Let’s explore together the new feature of mapCrowd.2
Go to: www.mapcrowd.org
You are landing on the public section of the website.
Please click on ’Menu’ then Login to access the private section of the tool and to begin filling in data.
Enter the login and the password you received from the mapCrowd administrators.
Please respect the exact writing of the password. It includes capital letters and/or numbers.
Click on ‘Sign in’.
You are landing on your country page. Here, “Åland Islands” is our country example.
You are now able to enter data into 5 sections.
You can start with any of these sections.
In this new version, a comment area has been created.
This area is related to each data point where you’ll be able to provide sources of the data or/and give more details about a data point.
Note that your comments will be automatically translated into the 3 others languages.
In the 2019 updated version, some questions that are out-of-date have been removed:
- in section 2. HCV Diagnostics: The questions on alpha-feto-protein and Abdominal ultrasound.
« Why have these been removed ? » We are moving into other, more simplified developments in diagnostics , and these questions do not relate to widespread practices in many countries or they do not reflect better practices in clinical care since the updated WHO testing and treatment guidelines (2018).
- in section 3. HCV Treatment: Simeprevir (Olysio®) and Ombitasvir/paritaprevir/ritonavir (Viekirax® + Exviera®)
With pangenotypic DAAs regimens now available, these treatments have low uptake and are less optimal or tolerable, particularly for more patients with more difficult-to-treat genotypes or liver disease.
New questions have been added:
And to fit with the latest development new questions have been added:
- in section 2. HCV Diagnostics:
2.6 Nucleic acid testing (NAT) – (DNA/RNA) platforms
These platforms perform HCV RNA test and detect the presence of the virus and distinguish persons with chronic HCV infection from those who have spontaneously cleared the infection.
Abbott, Roche, and Cepheid are the main NAT companies in market shares for these platforms.
- in section 3. HCV Treatment, Availibility and prices of DAAs
2 new pangenotypic drugs (or drugs that show high curative rates for all subtypes of the hepatitis C virus) are now included in the mapCrowd: Glecaprevir + Pibrentasvir (Maviret®) and Sofosbuvir + velpatasvir + voxilaprévir (Vosevi®)
And a new set of questions related to intellectual property barriers have been added.
3.3 Has there been patent term extension (beyond the standard 20 years) on the following medicines in your country?
3.4 Is there any initiative to overcome patents barriers and curb excessive prices in your country?
3.5 Data exclusivity
Does the law of your country provide data exclusivity?
Can data exclusivity be waived under certain circumstances?
Finally, in section 4. HCV policy, Harm reduction services, 4 questions have been added:
Question 4.3 focuses on the availability of harm reduction services within the country as well as in closed settings, such as prisons.
Thank you for your attention!
You can check on the public section your country profile.
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